Good morning
Your Little One
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%O₂ Sat
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kgWeight
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mlLast Feed
Recent Logs
Next Appointment
⚕️ This app is a personal tracking tool only. Not medical advice. Always follow your care team's guidance.
Read more
📲 Add to your home screen
iPhone: Tap Share → "Add to Home Screen" Android: Tap ⋮ → "Add to Home screen"
Monitor
Log a Reading
Tap a category — takes about 30 seconds
Log History
💧 O₂ Saturation
%
Right handLeft handRight footLeft foot
Calm / asleepActive / cryingJust fed
🚨 If below your alarm level — call your cardiac nurse immediately.
⚖️ Weight
kg
Morning before feedAfter feedEvening
🍼 Feeding & Fluids
ml
min
BottleBreastfeedNG tubeSolidsWater / oral
Took well 😊StruggledTired / slowVomited after
💊 Medication Given
✅ Full dose⚠️ Partial❌ Missed
🩺 Symptom
🫧 Working hard to breathe💙 Blue / dusky lips or fingers😴 Unusually tired or limp🍼 Not feeding well🤢 Vomiting🌡️ Fever💧 Puffy or swollen💜 Pale or mottled skin❓ Something else
😐 Mild😟 Moderate🚨 Severe — calling now
🚨 Blue lips, severe breathing difficulty, limpness — call 911/999 NOW.
💧 Diuretic Output
For babies on furosemide — log each wet diaper to track fluid output.
Wet onlyWet + dirtyDry (none)
SmallNormalLarge
💓 Heart Rhythm
Log readings from your smartwatch, pulse oximeter or hospital monitor.
bpm
RegularIrregularFast (tachycardia)Slow (bradycardia)Skipping / fluttering
Resting / sleepingFeedingActiveCrying
Seconds1–5 min5–30 minOngoing
Apple WatchFitbit / GarminPulse oximeterHospital monitorManual count
🚨 Still ongoing, child is blue or unresponsive — call 911/999 immediately.
Track
Weight & Growth
Log daily weights and watch the trend over time.
LATEST
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kg
7-DAY GAIN
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grams
TODAY FLUIDS
0
ml
⚖️ Log Weight
kg
Morning before feedAfter feedEvening
Today's feeds: 0 ml · Target: not set
📈 Growth Chart
Log at least 2 weights to see your chart
Healthy gain guide: ~150–200g/week in early months. Your cardiologist will set your child's personal target.
History
Schedule
Appointments
Every visit — plus your questions for the doctor.
Upcoming Visits
🙋 Questions for the Doctor
Write questions as they come to you — so you never forget to ask.
Daily Schedule
Medications
Medication schedule and reminder times.
🚨
Emergency Guide
Trust your instincts — you know your child.
🔴 Call 911 / 999 immediately
Blue or purple lips, tongue or fingernails
Severe breathing difficulty — nostrils flaring, chest pulling in
Unresponsive or limp — won't wake up
Seizures
🟡 Call your cardiac nurse
O₂ below your alarm threshold
Breathing faster than normal at rest
Poor feeding — less than usual, sweating during feeds
Weight loss over 2–3 days, or sudden gain
Swelling around eyes, belly or legs
Unusual tiredness or persistent vomiting
💡 Always trust your instincts. Your care team would always rather hear from you.
Plain-Language Guide
Heart Defects Explained
No medical degree needed. Tap any condition to read more.
🔓
Patent Ductus Arteriosus
PDA
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Simple explanation
Before birth, babies have a natural shortcut between two major blood vessels that should close within a day or two of birth. In PDA, it stays open, letting blood flow the wrong way and making the heart and lungs work harder.Small PDAs may close on their own. Larger ones can be treated with medication (ibuprofen or indomethacin) or a quick catheter procedure — no open chest surgery needed in most cases.
About 1 in 500 full-term babies — much more common in premature babies
Signs: Fast breathing, poor feeding, slow weight gain, heart murmur
One of the most treatable heart conditions — outcomes are excellent
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Atrial Septal Defect
ASD
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Simple explanation
A hole between the two upper chambers of the heart. Blood that has already been to the lungs leaks back and goes again, making the right side work harder than it should.Many ASDs can be closed with a simple catheter procedure — no open-heart surgery needed. Small ones may never cause problems and can sometimes close on their own.
About 1 in 1,500 babies — often not found until childhood or later
Signs: Often none — or fatigue, frequent chest infections, breathing difficulties in larger defects
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Ventricular Septal Defect
VSD
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Simple explanation
A hole in the wall between the two pumping chambers. Blood leaks the wrong way, making the heart work harder than it should.The most common CHD. Small VSDs often close on their own by age 2–3. Larger ones may need a catheter patch or surgery.
About 1 in 500 babies — the most common congenital heart defect
Signs: Fast breathing, poor feeding, slow weight gain, sweating during feeds
🫀
Hypoplastic Left Heart Syndrome
HLHS
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Simple explanation
The left side of the heart is too small to pump blood to the body. The right side has to do all the work instead.Babies need 3 open-heart surgeries over the first few years: Norwood (newborn), Glenn (4–6 months), Fontan (2–4 years).
About 1 in 4,000 babies
The interstage period between Norwood and Glenn is when daily home monitoring is most critical
With modern care, many HLHS children grow up to lead fulfilling lives
💙
Tetralogy of Fallot
TOF
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Simple explanation
Four problems in one — a hole between chambers, a narrowed pulmonary valve, the aorta in the wrong place, and a thickened right ventricle wall. Together, not enough blood reaches the lungs to pick up oxygen.Usually one open-heart surgery between 3–6 months of age. Outcomes are very good.
"Tet spells" — baby goes blue and cries. Pull knees to chest and call your care team.
About 1 in 2,500 babies
🔄
Transposition of the Great Arteries
TGA
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Simple explanation
The two main arteries leaving the heart are switched around — blood keeps circling in two separate loops instead of mixing. Babies are usually very blue at birth.Arterial switch surgery in the first week of life. After surgery most children have near-normal life expectancy.
About 1 in 3,500 babies
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Coarctation of the Aorta
CoA
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Simple explanation
The aorta has a narrow section — like a kink in a garden hose. The heart has to pump much harder to push blood through the narrow part.Treatment is surgery in babies, or a balloon procedure / stent in older children. The outlook after repair is very good.
About 1 in 2,500 babies
Signs: Cold or pale lower body, weak pulse in the legs
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Pulmonary Valve Stenosis
PVS
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Simple explanation
The pulmonary valve — the door that lets blood flow from the heart to the lungs — is narrower or stiffer than it should be. The heart has to pump harder to push blood through this narrow doorway.Mild cases may need no treatment, just regular check-ups. Moderate to severe cases are often treated with a balloon catheter procedure that gently stretches the valve open — usually no open-heart surgery needed.
About 1 in 2,000 babies — one of the more common valve conditions
Signs: A heart murmur, tiring easily, or shortness of breath with activity — often found during a routine check-up
Balloon valvuloplasty has excellent results, and many children go on to live very normal, active lives
Your Support Network
Care Team
One-tap calls to everyone who matters. Add contacts in Settings ⚙️.
Share with Your Cardiologist
Clinic Report
A summary of your child's recent readings — ready to share.
❤️
Little Heart Tracker
7-day report
💡 Screenshot this screen or tap Share to send before your appointment so your cardiologist can review trends ahead of time.
Celebrate Every Victory
Milestone Journal
Record the moments that make all of this worth it.
✨ Add a Milestone
🏠 First day home😄 First smile🍼 Fed without NG tube✂️ Surgery complete⚖️ Reached weight goal🚶 First steps✨ Something else
Your milestones
Be Ready
Hospital Go-Bag
Tick off what's packed before any admission.
Checklist
Tap an item to mark it packed.
Caregiver Wellbeing
Wellness
You matter too. Track your sleep, clear your mind, and breathe.
Log last night
hrs
Your sleep over time
Log at least 2 nights to see your chart
If your average is consistently below 5 hours, please speak to your GP — you deserve support too.
History
💭 Brain Dump
This space is just for you. Jot down whatever is on your mind — worries, frustrations, things you can't say out loud. No one else will see this.
Your entries
🌬️ Breathing & Relaxation
A few minutes of calm can make a real difference. Try one of these whenever you need a reset.
🌀 4-7-8 Breathing
Breathe in quietly through your nose for 4 seconds. Hold your breath for 7 seconds. Exhale slowly through your mouth for 8 seconds. Repeat 4 times. This helps calm your nervous system, especially before sleep or during a stressful moment.
📦 Box Breathing
Breathe in for 4 seconds, hold for 4 seconds, breathe out for 4 seconds, hold for 4 seconds. Picture tracing the four sides of a square as you go. Repeat for 1–2 minutes to feel steadier.
🤲 5-4-3-2-1 Grounding
Name 5 things you can see, 4 things you can touch, 3 things you can hear, 2 things you can smell, and 1 thing you can taste. This gently brings your mind back to the present moment when anxiety feels overwhelming.
💪 Progressive Muscle Relaxation
Starting at your toes, tense each muscle group for 5 seconds, then release. Slowly work your way up — feet, legs, stomach, hands, arms, shoulders, face. Notice the difference between tension and relaxation as you go.
For the Whole Family
Supporting Siblings
When one child is ill, the whole family feels it.
🧒 Ages 2–5 — Keep it simple
Use simple words: "Baby's heart needs help from the doctors. We love you just as much." Keep routines where possible and give extra cuddles.
Watch for regression, clinginess or acting out — these are normal stress responses, not misbehaviour.
🧒 Ages 6–12 — Give honest information
Children this age imagine the worst if left in the dark. Use real words: "The doctors are fixing a problem with the heart. It's serious but the doctors are very good at this." It's okay to say "I don't know."
🧑 Teenagers — Include them
Teens feel left out when excluded. Acknowledge that it's hard for them too. Their anger or withdrawal is often fear. Keep the lines open.
💬 Things all siblings need to hear
"This is not your fault."
"Your feelings make sense. You can always talk to me."
"You are loved just as much."
"It's okay to still have fun and be happy."
💜 Siblings by Heart and Mended Little Hearts offer sibling-specific resources. Your cardiac social worker can connect you with family counselling.